If you are lucky enough and infertility isn’t something you have had to deal with personally then it can be a difficult thing to fully understand with regards to the process and the emotions involved. I have lots of friends and family who have done their best to understand my journey and who have tried to inform themselves through asking questions or reading up on things to be as supportive as they can and for this I will be eternally grateful. I wanted to take this opportunity to list 5 facts that some of my infertile friends will no doubt connect with and as a kind of “heads up” to those who have family or friends going through this. Who knows, maybe it will help you to have a better understanding of what they are talking about, what to say or not to say or maybe you already know all of this and I’m just preaching to the converted!!
1). We don’t hate people who are pregnant so please don’t be scared to tell us if it’s you or mention someone who is! Yes it’s true, we may be envious and we may wish with every aching bone in our body that we were too, but we’re not and we are handling that the best we can. Yes we may feel sad about it, but we aren’t sad that you are being given a precious gift and it’s not that you don’t deserve it, we are just sad that we don’t know if it will ever be us one day. Telling us about how you feel and how you found out and what you did and who you told….actually gives us hope and makes us excited about the prospect of experiencing that one day for ourselves. So long as you are aware and sensitive to the mixed emotions we may feel and you know that it is not personal and that we are not not happy for you, then please let us be part of your journey – we are mamma’s without a baby and will probably be one of your best supports and more interested than you can imagine – we have been so ready for so long and have no doubt researched everything about pregnancy till it’s coming out of our ears. In fact, our pregnant friends bring us comfort and understanding in a way that others cannot – so long as you are not complaining about how lucky we are not to be pregnant – only then do we hate pregnant people!
2) We have learned to speak another language! Seriously, it’s true my infertile friends will understand the following – the rest of you will more than likely not!
A typical thread on a support group for infertility or for info on a treatment you are undergoing:
“So thats us been TTC now for what seems like forever! We are currently on CD9 and my CM has def changed (sorry for TMI) so I think something is happening – me and DH will BD between now and CD15 and then on 21DPO I will schedule blood work. Hopefully it will show O and then we can start the TWW, I really hope AF stays away and I can take a HPT and we finally get our BFP – don’t think I can handle another BFN! Sending you all baby dust for your BFP’s and sticky babies!”
This is a minor example and it took me some time to get the hang of the lingo – I used to get frustrated and be like, “Aaaaaaarrrgghhh I just want to know if this symptom is common or not and now I’m more confused that ever!!!” But now I understand most of it and I realise it’s almost like the abbreviations give the threads more privacy and only people who are experiencing this crappy situation have the right to understand what each other are saying. For those of you who are interested in understanding the language your infertile friend speaks I will rewrite the above statement:
“So thats us been TTC (trying to conceive) now for what seems like forever! We are currently on CD9 (cycle day – days since day one of your period) and my CM (cervical mucus!!) has def changed (sorry for TMI- too much information) so I think something is happening – me and DH (darling husband – some people say OH for other half) will BD (baby dance – have sex!) between now and CD15 (cycle day 15) and then on 21DPO (21 days past ovulation – ovulation happens approx CD11) I will schedule blood work. Hopefully it I’ll show O (ovulation) and then we can start the TWW (two week wait – the time you have to wait before taking a pregnancy test), I really hope AF (Aunt Flow – your period) stays away and I can take a HPT (home pregnancy test) and we finally get our BFP (Big fat positive) – don’t think I can handle another BFN! (Big fat negative). Sending you all baby dust for your BFP’s and sticky babies!” – A sticky baby refers to the challenge of once getting pregnant – managing to hold on to the pregnancy by praying that the embryo you have had all the trouble creating actually burrows in and sticks!
3). Being around babies or things to do with babies doesn’t upset us! This is very much like fact 1 where sometimes we can have mixed emotions based solely on where we are on our personal emotional roller-coasters but if you make it ok for us to tell you that then that’s all we need! In fact being around babies makes us more determined to keep on fighting for what we want, it reminds us of the end goal! That may sound strange but some of us have been doing this for so long and had to endure months or years of weight loss, diet change, new fangled exercise classes, failed treatment cycles, mood swings, disappointment and heartache that sometimes you lose sight of the whole purpose of this because the journey gets in the way….your babies help to keep us focused and remind us how much we want to be a mummy like you! In fact, the more involved you let us be the more our confidence grows to keep fighting the fight so don’t be scared to get us changing nappies, helping with bath time or allowing us to feed and wind your babies it makes us feel like you believe in our inner mummy too. Please don’t be scared to complain about how hard it is, we don’t think that means your ungrateful or being insensitive we want to be there for you because hopefully one day when we are finally mummy’s ourselves you will be there for us too!
4). Don’t be scared to say the wrong thing or ask the wrong question coz we don’t know what we are doing either, we are still learning about it all too and you might ask something we didn’t think to ask or you may make a statement that we hadn’t yet considered. We would rather be able to discuss it and talk about how we feel than pretend it’s not on our minds. There are a few exceptions to this – the following statements/questions are never welcomed:
“Stop thinking about it and it will happen” – Annoying – we are so passed that stage and if we stop thinking about it we won’t suddenly start ovulating or cure our endometriosis or make our partners sperm better, if you don’t know the condition causing the infertility please don’t say this!
“Things happen for a reason.” – Annoying – what’s the reason???? Plenty things happen with no good reason and good people being unable to have a family that they would do anything for has no good reason….please don’t make me feel like there is a good reason for me not being able to be a mummy or making my partner a daddy. Things don’t always happen for a reason – sometimes s**t happens would be the preferred statement!!
“Maybe infertility is the bodies way of saying you weren’t meant to have babies” – Annoying, in fact this has to be the most annoying thing I have ever had said to me. So let’s clarify, does that mean that diabetic people were just not meant to have insulin in their bodies? Don’t be so ridiculous! I think that if natural selection was a factor in this condition then surely there are a lot more people in society who should be infertile before us but seem to have no issues in procreating!!
There are probably a few more statements out there, but so long as you avoid the obvious (like the above) then really we would rather be able to talk about it and even laugh about it when the mood takes us! It’s all very confusing for everyone involved the only difference is we have no choice but to learn it coz we’re living it!
5). Sometimes we lose sight of other peoples lives, but we don’t mean to. Infertility can sometimes become all encompassing particularly when you are starting a new treatment. New treatments or the next cycle of something new brings new hope, more research needed, more attention required to doing everything you can to make this be the one, new forums to check out, new cycle buddies to meet online, new statistics needing gathered, new conversations to have with your partner, new updates for your friends, new symptoms to be spotting and new days to be counting all finalised with the dreaded pregnancy test that will announce your fate at the end of it all to then – possibly – start all over again with another piece of heartache under your belt, another blow to pick yourself up from and another smile to wear on top of a trembling lip. So I would like to apologise here on my blog to anyone I have ever lost sight of during this time, I am truly sorry if my journey has ever caused me to be self involved and not give you the attention you have deserved during your own issues. I have consciously tried to not let that be the case, but there are times where you have to jump in to this head first and just hope that you don’t sink and sometimes that means you are so focused on what day it is in your cycle or what your body should be doing now that you forget that other people have things going on too. Please still be our friends, forgive us our self focus and just shout a little louder till we hear you through our own wee bubble, we are still in there – sometimes we just get a little overwhelmed with listening to our own bodies we forget to listen to other peoples voices!
These tips are based solely on my own experiences and feelings and are not intended to be presumptuous of how other women in my shoes feel. All of our experiences and journeys are so different this is merely a guide to what I have found to be common feelings shared among friends I have made during our 3 years of treatment – but maybe no one else feels these things and it’s just little ole me!! In that case only my own family and friends reading this need to take heed!! Haha!!